July 26, 2020 - I’m Still Here!
It is two days post brain surgery and I am still here! It is miraculous what the medical community can do with the human body. I had surgery Friday early morning and they released me Saturday at noon. Part of me wanted to stay in the hospital, as the release seemed too quick. However, the strong desire to see Jamie and Mason prevailed all.
We are tucked into the Whitley Hotel for a few days as I continue to recover. My euphoric pain free surgery has been ceremoniously replaced with head pain like no other. As the surgery required pain deadening medicine is wearing off, my nerve endings are waking up and it hurts. I will not lie. Jamie is keeping me medicated on Oxy, Robaxin, and Tylenol as frequently as I can have it. I wish it were more frequent!
Our plan is to hang out at the Whitley for a few days before we head home to Ponte Vedra. We want to be close to the doctors and hospitals barring any complications. The main complication would be seeping or leaking from the incision, i.e. spinal/brain fluid. We do not anticipate this horror, but want to be careful nonetheless.
Mason is busy entertaining himself with LEGO building, Minecraft, and snuggles with Mommy.
We should hear the pathology results tomorrow which will chart the course for my continued treatment. We know there is Gamma Knife Radiation in my future, as well as additional chemo. You know I will over share the details, but I promised my oncologist I would not get ahead of anything. I have been very disciplined in ignoring Dr. Google. It does help that it feels like someone smashed the back of your head with a sledgehammer. Reading and googling is not that fun. Thank goodness for jellied ice packs and a hotel that brings you a mini fridge with a freezer. And, a husband that takes care of me so lovingly.
I also want to thank all of you who have reached out with your love and well wishes. There are no words for how humbled I am. It brings me great comfort, but I know it brings Jamie even more comfort. Comfort I can’t provide.
This is a short post for today, it’s about all I can muster. But don’t you worry, I’ll be back in true form. My spirit is not broken, my will to fight is only intensified.